Day 16 writing style #HAWMC #WEGO

For me, something, a picture or event just goes from brain to blogsy. I'll be watching a movie & have to stop & write my blog...example: after 'fight' tonight with family about moving

Today I realized that from now until we move there will never be a day when I'm not asked to go through boxes, asked about items-should I, can I, may I keep things? Things I love. Things that bring back memories. Happy memories, sad memories, bittersweet memories. Each item has a story, & each story carries grief, laughter, love, & letting go. Mom & dad see my reaction to this as anger-when it's the opposite. Each item I see Zoe, from the first day I got her until the day the vet put her to sleep. I see my overseas life-when I did something that mattered. I helped people...there was a need for me in this world, & there really isn't that need now. I see old friends-some I hold so close to my heart even though I've lost them in one way or another. I see Kris-my late brother. I see my old future potential. I see my test results that admitted me into graduate school. I see gifts from my university students. As much as I hate to say it pain overwhelms any feeling of joy at looking at these precious items. Mom & dad think my resistance to change boils down to drs & morphine, when it's grief over losing professionals who see me as a person who is legitimately hurting & in pain. Mom feels she is the whipping post, dad feels like the joy he used to feel can never be found again, & I feel like an anchor weighing them down from sailing into their sunset years together.

 

 

Day 8-WEGO Health...best conversation I had this week

As I spent the past 2-3 days in excruciating pain & or dead asleep from meds, I'm late posting this. Honestly? I had no conversations this week. I live with my parents as my caretakers, & of course we talk, but I seem to be up with #painsomnia & asleep when they are up, & they are great & loving, but I had no conversations at all this week, & yes, it's sad, pitiful, & I hate writing this as I don't want to be 'oh poor me'. I talk to myself ALL the time, to my dear house rabbit who lives in my room, & tweets & Facebook posts. Believe me when I say I'm not copping out & doing the work. When you realize because you are too sick to even make it downstairs, it's very humbling to admit the last real conversation you had was one last month-& it was one of about 15 in the past 5 years. I think people who aren't chronically sick don't really think about how a conversation, even with someone you don't know in the store checkout line, are vital to the common mental human touch we all need.

 

Worth at least a few words

After yesterday's adventures in dentistry, these pics show better than I can explain how I feel on the outside, inside, my physical self, emotional self, mind, soul, heart, & brain.

 

 

Present skin

 I have a pinched nerve in my back, which after the fall a few weeks ago has been truly unbearable. Like I want to blow my head off or be put in a coma just so I won't be aware of the pain. A few minutes ago, I reached back to adjust the always present ice pack for inflammation that has filled my body like I'm a pod person, & when I did I barely grazed my skin. Not with a fingernail, not with anything sharp-just my finger barely touching my skin...& it felt like I had taken a lit match & held it there to burn & fester. I try & see my life like this pic-the left exciting, with beautiful colors & tons of pebbles representing events, Super Bowl parties, travel, drinks with friends. The right side is my now life-giant circles of bland colorless life.

 

Groundhog day, the movie

 I have a friend who never really watched tv or movies, but LOVED the flick Groundhog Day. With Bill Murray in it you can hardly go wrong (God I love that man). Funny thing about my life...I live that movie-where everything is the same day after day after day after day after day-did I mention day after day? The only things that change are the number of my falls, which beloved pet dies, & the once a month awesome yet painful neuro doctor visit-awesome cos he is the only person physically close (as in I see him regularly) to me that really, truly, thoroughly gets fibromyalgia, the depression, the extreme sensitivity to lights, flares, & knows why & exactly where it hurts every single time. 

 

 

Now, evidently in a few months my day will change. I will move. I will grieve, yet again, about losing someone I love. But that's par for my course, as losing friends who can't understand why sitting & talking to them keeps me in bed for a few day, or why working 4 hours a week (which my friend said '4 hours a week is nothing!') truly is something impossible in my world, or friends who devastate me more by saying 'you can do it! You'll be fine' having no idea the cost. 

So happy groundhog day to my friend I miss so much I get physically sick to my stomach, who I will always link him & groundhog day, & to those of you whose days vary, I envy you in a sweet way. For you will never know what reliving the same day over again for 5 years does to a persons soul. 

 

Zoe cat, Oct. 25,95-Feb. 1, 2011

 I just woke up, in a frenzied, panicked state. A year ago today, I had to put my beloved Zoe cat, age 15 & 1/2 years old, to sleep. It was the right thing & all that, but it is as fresh & cruel as it was a year ago. My longtime vet had the wisdom after giving her the shot that would end her & listening to make sure her heart stopped to gently wrap Zoe up in the towel I brought her in, to give me visual closure. To see her disappear into that mint green rolled up towel will forever be my last look at Zoe. 

 

I read recently somewhere about time healing, so to give time time, but for me, in this state of the housebound everyday is another long, hard same day, I hate time. Time in this case has put distance from that event but has only broken my heart more. Yes I remember all the good times with Zoe, all the overseas close calls & her little passport that got left in the Prague airport, but right now all I feel & have felt this past year is pain. 

 

 

Fading & dividing

 I got this new app called Percolator, & it's awesome. It gives new movement & design to all my normally raw pics. Experimenting with it is so fun, & also telling. It fractions & divides & fades my pics just like my illnesses are doing. It shows how I am breaking apart into wee little pieces, as the old me slowly fades away...but it's a great app!