Showing posts with label facebook. Show all posts
Showing posts with label facebook. Show all posts

Monday, April 9, 2012

Day 8-WEGO Health...best conversation I had this week

As I spent the past 2-3 days in excruciating pain & or dead asleep from meds, I'm late posting this. Honestly? I had no conversations this week. I live with my parents as my caretakers, & of course we talk, but I seem to be up with #painsomnia & asleep when they are up, & they are great & loving, but I had no conversations at all this week, & yes, it's sad, pitiful, & I hate writing this as I don't want to be 'oh poor me'. I talk to myself ALL the time, to my dear house rabbit who lives in my room, & tweets & Facebook posts. Believe me when I say I'm not copping out & doing the work. When you realize because you are too sick to even make it downstairs, it's very humbling to admit the last real conversation you had was one last month-& it was one of about 15 in the past 5 years. I think people who aren't chronically sick don't really think about how a conversation, even with someone you don't know in the store checkout line, are vital to the common mental human touch we all need.

 

Saturday, February 25, 2012

Mean girls

Recently I had a strange virtual encounter. And not of the fun kind...my blog automatically links/is networked to my Facebook, & though I usually post it with an intro, it goes up regardless. A girl who I rarely talk to-one of those friends we all have-you went to high school or university with them, but you aren't sure exactly who they are but you have 37 mutual friends...I think we all have those & some have become my favorite people on earth, some not. Anyway, I don't know if she knew the blog attached was mine as it doesn't have my name & could be something I just put up on my page, but she made a pretty rude comment asking where I got such s#+t. I didn't know what she meant but it came across, & I heard privately from people who were really upset that are spilling out my heart in the particular blog she wrote that on my Facebook page, for my nieces, cousins, etc to see, that she felt my attitude/me not 'don't worry be happy' feelings weren't how she subscribed to life. As my mom taught me, I considered the source, though I still can't place her ;) & this morning unfriended her. She won't care & it doesn't matter, but I realized how lucky I am to have friends who understand firsthand or support me even though they can't totally get these illnesses. It really hurt though, & it bothered me all week. I'm letting it go, after a week of wounded pride & waiting to see if she would say anything, then a few hours ago seeing a status I felt was ridiculous pushed the unfriend button. Weight lifted.

 

Friday, December 2, 2011

my picture, used

one of my photos was used today in the facebook page for the national fibromyalgia and chronic pain association! they have a new holiday album up, and my picture was used as the first picture, and if i understand the facebook way, the cover by default! i was so proud, and although it was a sad picture, and represents all the pain of fibromyalgia, i knew there were people who would and have seen this face in their mirror, in a loved one's face, etc. i am beyond honored to have my pic used!