Monday, November 28, 2011

flying around the Milky Way


as a huge space/solar system buff, i recently bought Solar Walk (app). for under $3, now on sale for $1.99, i can fly around the milky way, slowly turning and watching the galaxy, stars, and planets pass by. it is amazingly therapy, and much cheaper ; ). it is an early christmas present...worth every penny!



Saturday, November 26, 2011

given guilt




two days after thanksgiving, and guilt is given and anger is reached. i hate that i have to take medicine and it makes me knocked out. i hate that being sick is so unpredictable and doesn't care that halfway through thanksgiving day, the two previous busy (for my body) days take their toll and my body says 'no more'. fibromyalgia doesn't care that the day to give out isn't the day before thanksgiving or whatever big day-it just attacks. it leaves me feeling hurt, betrayed, guilty, angry, sad, and just depressed. it doesn't help that two days after i'm reminded of this, with crying from another. wow.

Friday, November 25, 2011

Thursday, November 24, 2011

third day fail

thanksgiving day, 2011. after 2 and 1/2 days, halfway through the third, i crashed. for a chronic sick person, not balancing out the events of holidays can leave you spent and done on the most important main day. halfway through the day i had to go upstairs and i laid down for just a minute and crashed. i couldn't wake up, make my body work, and left my family disappointed and upset with me. now on thanksgiving night, i'm in horrible pain, feeling totally guilty, and like the sick black sheep of the family. 

Wednesday, November 23, 2011

Nephew time!

Today my brother, his lovely wife, and two adorable boys came to see us. Jack (who is 6) and I played iPad games all day-his favorites were 'World of Goo' which of course he was so much more better than yours truly...I'm thinking he would make a great engineer as he loves math-also he loved the great 'Star Walk for iPad' and we searched for the Star War galaxies as we are both obsessed with Star Wars. We had so much fun.

I finally got to meet my new nephew, Charlie, who smiled at me the first time he saw me and laughed as I talked to him like I do my house rabbit, Chai. Why do we talk to babies like cute animals? Wait, why do we do that to animals? I don't think Chai bunny even knows what my real voice sounds like...so here are a couple of shots of me and Charlie-and of course I'll have loads more to come! Happy day before Thanksgiving.


Monday, November 21, 2011

Charlie Cho

Many of you know that I have a new nephew, Charlie, that I haven't met yet. My parents have been to see him twice, but traveling is too painful for me. My brother and his family are now here-and tomorrow I'll get to see Charlie! His brother, Jack, calls him Cho...I cannot wait to grill him to see how he came up with that nickname. He loves Star Wars so we will have LOADS to talk about! Mom and dad have been setting up the house and today this baby pen/crib thing appeared, much to the cat's dismay. I can't wait to have a picture of Charlie to show using this! : )


those accidental reminders

Tonight, deeply engrossed in three great shows...PBS-America in Primetime, AMC-The Walking Dead, and Hell of Wheels, I was on the edge of my seat with anticipation, zombies, railroad propaganda, cowboys and indians, and  how TV really does seem to be in a great "golden age" with so many quality shows...despite the dregs of society reality shows I hate so much : ). I was knee deep in zombies when i had to reach in my bag to grab something, and couldn't find it by touch. I waited until the commercial, and turned on the lamp (you can't watch zombies with the lights on!) to be able to see what I was looking for-and this is what I saw.
Immediately, my spirit fell. Sometimes just the simple stupid things of looking down in your bag and seeing the pain medicines, muscle medicines, etc. and my neurologist/pain clinic business card just guts me, and I'm left feeling like a zombie, walking around with all my humiliating, debilitating, painful, ugly effects on my body yet I'm still walking around, and will be according to the show until someone takes off my head. ; )  I have to laugh about it or I won't survive, but I promise, I won't start chewing on anyones legs anytime soon...probably.